Third Annual Patient Fair Educates Community

LOMA LINDA>> September is sickle cell disease awareness month which is observed annually throughout the nation. Loma Linda University Health PossAbilities held its third annual patient fair Sunday, Sept. 18, at Loma Linda University Medical Center East Campus, Tom and Vi Zapara Rehabilitation Pavilion, 25333 Barton Rd., Loma Linda. The afternoon was planned for all to enjoy as well as be educated about the No. 1 genetically inherited blood disease. “A joyful heart is good medicine,” said Sheila Marchbanks, sickle cell support director and patient liaison. “With cheerful participation of the entire community, this is a primetime opportunity to learn more about sickle cell disease and to meet and mingle with the people affected by it – the patients, parents, family, caregivers, health care providers, advocates, supporters and community leaders.” The fair is designed as a place for individuals to connect in a positive, pain free environment where conversation and relationships are fostered by an atmosphere of joy. With activities and presentations planned for all ages, from the youngest toddlers to the most esteemed mature adults, the event had educational components for everyone. The event featured entertainment from Mel Austin from Squeaky Clean Comedy, live music and an informational keynote session by Kenneth Carson, a SCD advocate and community leader. Marchbanks added that misunderstanding is quite common with SCD. “We hope to dispel some of that unknowingness associated with sickle cell disease,” she said. Sickle cell disease, named the "invisible disease,” is a blood disorder that occurs internally where the complications and manifestations of the disease may or may not be visible, and it affects approximately 100,000 Americans. Sickle cell awareness month and this patient fair are designed to make the disease known and more visible to everyone. “The goal for the afternoon (was) to shed light on this disease and demonstrate that we can all gain greater knowledge, understanding, compassion and care and experience to help others attain greater joy,” Marchbanks said.